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Montpelier Tomorrow

Montpelier TomorrowMontpelier Tomorrow By Marylee MacDonald All Things That Matter Press, 2014. Lou Gehrig’s Disease or ALS, is a devastating disease. The victim loses motor function, may undergo personality changes, and will eventually be unable to eat and to breathe. How do family members cope with this disease when it strikes? Based on real-life experience, Marylee MacDonald has written a fine novel about how a family deals with this situation. I urge you to read Montpelier Tomorrow. At first, Colleen Gallagher’s instinct was just to help her daughter, who gave birth to her second child the same week her husband was diagnosed. But as her son-in-law Tony’s disease progressed, he became the third child in the family, not only physically disabled but regressively self-centered, compounding the difficulties of care. The novel raises so many questions: What does it mean to be a good mother, a good wife? How do we make end-of-life decisions that preserve the dignity not only of the dying, but of the caregivers? How do we make end-of-life decisions when the consequences of putting someone on a respirator or a feeding tube are not honestly discussed by medical professionals? Why is it so difficult to get a terminally ill person onto Medicaid?  Who pays for custodial care? Who should? You cannot read this novel and come away unchanged.

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